Minority Health Archive

A PUBLIC CULTURE FOR GUINEA PIGS: US Human Research Subjects after the Tuskegee Study

Weinstein, Matthew (2001) A PUBLIC CULTURE FOR GUINEA PIGS: US Human Research Subjects after the Tuskegee Study. Science as Culture, 10 (2). pp. 195-223.

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Abstract

This article explores an emerging culture and politics of ‘voluntary’ human research subjects in the United States. In the cultural studies and anthropology of science and medicine, we have become used to the voice of patients challenging and contradicting the voices of medical and scientific authority. Generally, however, our research has been the media which brings these discourses into juxtaposition. Rarely have patients organized themselves as a political mass to contest medical discourse directly. Some exceptions are the cases of activist patient cultures, which have tended to form around particular diseases, e.g. cancer, AIDS, Gulf War Syndrome, and environmental illness. These remain ambiguous in their etiology and thus provide a space for interpretation (cf. Dumit, 1998; Epstein, 1996; Fortun, 1996; Stacey, 1997).


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Item Type: Article
Additional Information: This article is available at the publisher’s Web site. Access to the full text is subject to the publisher’s access restrictions.
Uncontrolled Keywords: culture, politics, voluntary human research, human research, human research subjects, Tuskegee, Tuskegee study
Subjects: Health > Health Equity > Bioethics
Health
Health > Policy
Research
Research > studies
Research > methodologies
Related URLs:
Depositing User: Kismet Loftin-Bell
Date Deposited: 27 Sep 2005
Last Modified: 14 Jul 2011 14:50
Link to this item (URI): http://health-equity.pitt.edu/id/eprint/252

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