Minority Health Archive

Attitudes and Beliefs of African-Americans Toward Genetics, Genetic Testing, and Sickle Cell Disease Education and Awareness

Long, Katie A. and Thomas, Stephen B. and Grubs, Robin E. and Gettig, Elizabeth A. and Krishnamurti, Lakshmanan (2011) Attitudes and Beliefs of African-Americans Toward Genetics, Genetic Testing, and Sickle Cell Disease Education and Awareness. Journal of Genetic Counseling. ISSN 1059-7700

[img]
Preview
PDF
Download (260Kb) | Preview

    Abstract

    Research among African-Americans indicates this population perceives sickle cell (SCD) to be a serious disease and sickle cell trait (SCT) screening an important intervention. However, studies have consistently demonstrated a lower than desired uptake of SCD education, inadequate knowledge regarding personal and family trait status, and a low perceived susceptibility of giving birth to a child with the disease. We examined general attitudes and beliefs regarding genetics and genetic testing including prenatal testing and newborn screening; we used this information as the foundation to more specifically assess attitudes and beliefs regarding SCD and perceived barriers to SCD education and awareness. Thirty-five African-American adult men and women participated in one of four focus groups. Thematic analysis identified that both prenatal testing and newborn screening are acceptable forms of genetic testing. Based largely on their personal experiences, participants possessed an understanding of the natural progression of SCD but had a limited understanding of the inheritance and probable risk of giving birth to a child with the disease. Barriers to education and greater awareness of SCD were classified as personal, familial, and societal. Community based interventions focused on sharing the stories of individuals with first-hand experiences with SCD should be considered.


    Export/Citation:EndNote | BibTeX | Dublin Core | ASCII (Chicago style) | HTML Citation | OpenURL | Reference Manager
    Social Networking:

    Item Type: Article
    Uncontrolled Keywords: Sickle cell disease – African-American – Health belief – Qualitative research – Thematic analysis – Genetic testing – Genetic counseling
    Subjects: Health > Prenatal & Pediatric Health
    Health > Public Health > Chronic Illness & Diseases
    Practice > interventions
    Research
    Research > Genetics and Race
    Related URLs:
    Depositing User: Users 141 not found.
    Date Deposited: 19 Jul 2011 09:22
    Last Modified: 19 Jul 2011 09:22
    Link to this item (URI): http://health-equity.pitt.edu/id/eprint/2771

    Actions (login required)

    View Item

    Document Downloads