Minority Health Archive

Developing Culturally Sensitive Cancer Genetics Communication Aids for African Americans

Baty, Bonnie Jeanne and Kinney, Anita Yeomans and Ellis, Sara Marie (2003) Developing Culturally Sensitive Cancer Genetics Communication Aids for African Americans. American Journal of Medical Genetics, 118A. pp. 146-155.

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Abstract

The goal of this project was to develop educational materials to communicate genetic health information in a culturally sensitive manner. These materials were designed to communicate information about cancer risk, genetic testing options, and health management options in an African American kindred with a known BRCA1 mutation. Educational materials were pilot-tested in four African American focus groups varying in socioeconomic status and gender. The audiotaped focus groups consisted of presentation of the educational materials, followed by a feedback session led by an African American facilitator. Qualitative analysis of the focus group transcripts identified important themes and the educational materials were revised in response to the participants’ suggestions. The products included a booklet and a flip chart for use in educational sessions. Focus group participants recommended a substantial reduction in technical detail, and recommended that information be personalized and made relevant to the lives of the target population. Other critical themes included the importance of building trust in the medical system and avoiding words and images that have strong negative associations in the African American community. Strategies that were successful included nontechnical images to explain genetic concepts, clip art images to energize and personalize word slides, vibrant color, identifiably African American figures, and the development of themes relevant to many African Americans. The use of these materials in an ongoing study offering BRCA1 counseling and testing to a large, rural Louisiana-based kindred will provide additional feedback about the effectiveness of the culturally tailored genetic educationand counseling materials.


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Item Type: Article
Additional Information: This article is available at the publisher’s Web site. Access to the full text is subject to the publisher’s access restrictions.
Uncontrolled Keywords: cancer genetics; risk communication; African American health; education; cultural sensitivity; genetic counseling; focus groups; Black health; African American; Black
Subjects: Health > Public Health > Chronic Illness & Diseases > Cancer
Practice > outreach
Practice > interventions
Practice > service
Research > Genetics and Race
Teaching > Risk Management
Related URLs:
Depositing User: Kismet Loftin-Bell
Date Deposited: 21 Oct 2005
Last Modified: 30 Jun 2011 13:59
Link to this item (URI): http://health-equity.pitt.edu/id/eprint/292

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